Deciding for others - informed consent and decision making for research involving people without capacity

At Cardiff University they are conducting a study to look at healthcare professionals’ views and understanding of how decisions are made for people who are unable to provide their own informed consent for research, which may include those who have dementia or stroke or another condition resulting in cognitive impairment. 

We are keen to include health and social care professionals who are involved in research involving older people, such as geriatric medicine, old age psychiatry, nursing and Allied Health Care professionals, and social care practitioners. The findings from the survey will help with the ultimate aim of the project which is to develop an intervention to support informed consent for research involving adults who lack capacity, including those who have dementia.

We are limiting the survey to those in England and Wales only as the mental capacity legislation is different in Scotland. The survey takes 10-15 minutes to complete, and participants are able to download and keep a summary of the legislation governing proxy consent for research, and information about how the law applies to the scenarios used in the survey. So hopefully this will be an interesting, informative and useful experience for those kindly agreeing to take part!

The survey can be found at

All views are very important to them. If you have any questions, or would like more information about the study, please contact Victoria Shepherd, Cardiff University