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What we know now 2013: New information collated by the National End of Life Care Intelligence Network

The National End of Life Care Intelligence Network (NEoLCIN) has, in just three years, established itself as a leading national and international source of information on where, how and why people die in England, and the services provided to support them.

Three years ago we knew little about people’s hopes and fears, their planning for death or the places they died, and what influenced these.

Each year since the network was established there has been a leap in our knowledge and understanding, but this last year has seen exceptional progress and change.
This year’s ‘What we know now’ report covers more topics than before. It has many new sections, illustrating the breadth and depth of knowledge the network has gathered, including on public knowledge and attitudes, specialist palliative care services, ambulance usage, and the roles of primary care, care homes and social care in supporting dying people. Information has been published on the website (www.endoflifecare-intelligence.org.uk), in reports and in scientific literature. Findings have been reported widely in the media in the UK and also as far afield as South Africa.

Although it is hard to pick out highlights when all new information adds to our knowledge, two themes have gained prominence where in the past we knew little. These are the care of people with non-cancer conditions and the wide inequalities in end of life care. Both are areas in which improvements in access to and quality of end of life care can be made. Both merit further prioritisation in 2013-14.