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Raising our sights: services for adults with profound intellectual and multiple disabilities

Although people with profound intellectual and multiple disabilities are very disabled and do experience a much higher mortality rate than the rest of the population, it is evident that many live well into adult life, do recognise people around them, do respond to circumstances and do enjoy activities and relationships. Irrespective of the difficulties, and just like any other parents, most families love their disabled child and want the best for them. They want to protect them from harm, and to provide love and security for them. New models of providing services in a person-centred way should make us raise our sights. Examples of good practice show that, in general, the ‘personalisation agenda’ – the framework of person-centred planning and highly individualised services, increasingly funded through individual budgets, is providing what people need and want.