An ordinary life: supporting families whose child is dependent on medical technology or has complex health needs
We hope this booklet gives families in similar positions a chance to reflect on their own experiences and ideas on how to make life more ‘ordinary’. The information is based on the experiences of thirteen families who have a child with complex health care needs who uses medical technology. They told us what life was like for them as a family – what were the barriers to leading an ordinary life and what had made their lives better. This is not a long booklet; we understand that, as parents, you have lots of other important demands on your time. We do hope that you may recognise some of the issues that are illustrated in some of the stories and that we give you ideas on how to change something that may be an issue for your family as well as signposting to more detailed information. We hear from families that there is a lack of practical information for them. We hope that this booklet can begin to close the gap.