Looking for an ordinary life: Supporting children with complex health needs and/or dependent on medical technology
This briefing summarises findings about some of the current issues affecting children and young people with complex health needs (who may also be using medical technology) and their families. It is based on a development project funded by the Department of Health Voluntary Sector Investment Programme and carried out by the Foundation for People with Learning Disabilities. Nearly 40 children and families across England took part in the project. We heard from them about the barriers to achieving an ordinary family life and what things they were trying to overcome these; and we worked in five different areas with some families to help them try new approaches. Families described the difference that a suitable home, personal budgets (including the new personal health budgets) and person-centred approaches can make to their quality of life. They also discussed the support they need to achieve this.