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A Core Care Pathway for Children with Life-limiting and Life-threatening Conditions

Third Edition

Together for Short Lives advocates a care pathway approach to delivering care and support to children and families throughout their journey; from diagnosis to end of life and into bereavement. This pathway is guided by standards at each different stage of the journey, which aim to improve the provision and consistency of care and support to children and families. Each standard is supported by a series of goals, which combine to achieve the standard.

It is estimated that there are at least 49,000 children under 19 years across the UK living with a life-limiting or life-threatening condition who may require palliative care services (Fraser, L. K., 2012). There are over 300 conditions which fall into the life-limiting and life-threatening category. The Core Care Pathway provides a process which is relevant to any condition as it focuses on the child’s needs rather than the disease trajectory.