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Breaking Point

A report on caring without a break for children and adults with severe or profound learning disabilities

The Breaking Point Survey was carried out between March and April 2003. Seventy-six families took part. They came from all across England and Northern Ireland.

The term ‘short breaks’ is used throughout this report. Short breaks used to be referred to as ‘respite care’.

This report uses the words ‘children and adults with severe or profound learning disabilities’. By this we mean children and adults with the most severe form of learning disability who may also have physical, sensory and communication impairments. Some may have complex health needs.